Tuesday, April 21, 2009
Our Back to School Welcome
Owen , Dylan and Jake July 2006 before transplant
After everything these boys have gone through going back to school should have been a breeze , or so we thought...
I've talked with the school SO many times , gave them All sorts of Info on ALD , Bone marrow Transplant, the whole nine yards !!! Last year before school started I set up a meeting with the school nurse , Owen's Kindergarten teacher , Dylan's teachers were invited and Jake's, plus the principles. ONLY the nurse, Owen's teacher , and one of Jacobs showed up, everyone else was "busy" BUT , would be" filled in". Then , school started and Owen went willingly the first day , but had separation anxiety then next day.
I honestly can't believe this is how a school treats children with a terminal illness. You ALL should be ashamed of yourselfs you lack compassion and understanding
Here are a few facts you should know ~
Adrenoleukodystrophy - Facts and Information
Awareness Items From Zazzle
Awareness store ALD. Adrenoleukodystrophy, Alexander Disease Awareness, Krabbe, MLD, AMN, Leukodystrophies 10% of sales go to Little Warriors